Journey With Jen

 Well, just me. Little update on things. I was on the Methotrexate for 4 weeks and it didn't help with pain or inflammation at all.  It did cause some hair to come out, for the hair that I do have to dry out, and for total exhaustion throughout my body.  It really was a great 4 weeks!  (just kidding!)  My last dose was just a few days ago so I'll be glad when it is out of my system. Apparently it must help most people because they were really surprised when I had absolutely nothing positive to say about the last 4 weeks.  My knee swelled so much I could not squat.  My hands had sharp pain several times this month.  Hips hurt constantly not just when I'm trying to sleep.  And my feet are still swelling.  So really - nothing positive to say.  😂 So, they drew blood and are now doing a pharmacogenetics test.   Besides the physical part of it all - I am really missing being me.  I want to be outdoors.  Go on a hike. ...

My blood tests came back and apparently, I don't have any food allergies.  I was a bit disappointed.  I keep hoping for a moment where it is a, "yes!  that's the reason!"  I wanted to know the reason for this stuff to be happening.  To point at something and I have this food intolerance and it caused my body to react.  But alas, that is not the case for me. I did go to another podiatrist.  The idea that the arthritis on the top of my foot was causing all of this swelling in my feet.  It just didn't seem right.  That clinic slapped a label on it and that was it.  The new podiatrist didn't even do x-rays.  He felt around on my feet and told me that several of his patients have arthritis in their feet but it does not look like mine.  He thinks that it has be something in my system causing the swelling because when ever it is not working right - swelling always go to the feet. He saw that I had to have kidney surgery and wants to b...

 It is July now.  And still trying to get this figured out.  When I spoke to my doctor about seeing a rheumatologist, I was told that the wait to get in was around a year and a half.  Seriously!  And that is if they look at your file and accept you.  So, my primary doctor ran a few test that the rheumatology clinic require before they will accept you.  Those numbers did not turn out bad enough.  I got messaged through my Mercy app the results and that was it.  End of the line despite the fact that my feet swell, joints in my hands are crooked, and I sleep with ice packs. And, every 6 weeks the foot doctor wants to see me even though, he can't do anything to fix it.  The only option they have suggested is wearing my compression socks, tennis shoes, and maybe adding an orthotic to keep my foot from moving so much.  That sounds miserable to me. I was wearing my Chaco's everyday just a few months ago!   I told them that I woul...

  The human body is truly an amazing creation.  How everything works together just to keep us going each day.  Because it takes everything working together, it doesn't take much to throw it off balance.  Unfortunately, mine has been in a rough cycle the past two years. The swelling that started on March 10th still an issue.  I've had an echocardiogram.  I had ultrasound to rule out blood clots in femoral artery.  I also went to a vein clinic and had an ultrasound done on the smaller veins in my leg and to make sure that all my valves were opening and closing correctly.  All of those tests were clear.  Which leads me back to the foot clinic.  The end of April I got into the foot clinic and x-rays were done.  He could not see anything but arthritis on top where the swelling is.  No fracture.  No other reason for the fluid. I got a steroid shot and two pills.  One steroid and one for inflammation.  I also got a comp...

 October of last year was when it all began.  I'd been having some pain for a few months and finally decided to get it check out.  Doctor figured it was a hernia and sent me to a CT scan to confirm.  Then, I got my list of diagnosis.  And a new set of doctors.  It has been hard.  After three surgeries in an 8 month span -- my body is still healing.  The first four weeks of summer break, I did nothing.  I slept a lot.  I kept thinking that I need to get up and start my summer projects.  But, I was just exhausted.  The "want to" was not there.  The second month, I slowly started feeling more like myself. I have started walking again.  Not everyday yet, but it's getting there.  I know that sitting there is not going to help my energy levels or my healing overall.  But somedays, the tired wins.  I have one more thing scheduled this year.  A colonoscopy is planned for November.  Praying nothing is ...

 It's been 10 days since my hysterectomy.  The pain hasn't been that bad.  After kidney surgery, this pain feels like a breeze!  Except for one thing.  Last week, I was totally exhausted.  I would take my heavy pain pill in the evening.  Then, wake up hurting because it has been so long, take more meds and then a morning nap.  Awake for a few hours, then an afternoon nap.  Then, sadly, usually one more nap before bed.  And that was without my heavy pills during the day.  My body is just tired.  I was given meds for spasms and didn't use them at all last week.  But those have started this week.    I don't necessarily think the exhaustion has to do with this surgery.  I believe that having 3 surgeries in 8 months is finally taking it's toll.  And interesting little tidbit that I found. On average, abdominal surgery takes 2 years to recover microscopely, although a majority of the healing happens in the fi...

 Today has been one month since my kidney cancer surgery.  I'm doing pretty good.  My energy is still not there and if I do too much my cut muscle will hurt.  My 12 staples going across my side has come out.  Last Thursday was the first time I sneezed in a month.  I thought that was so weird.  But with the muscle getting cut and then being sewn together -- my diaphragm would not expand enough to let me sneeze.  I would would start to sneeze, but when I tried to get the big breath, my sneeze stopped.  Our bodies are weird aren't then?   Monday I start back to work.  I'm doing half days this first week back to see how it goes.  Doctor recommended 6-8 weeks off, but I'm trying to go back part time after 4 weeks.  Since I get tired, I am sure that I'll be coming home and taking a nap with my ice pack when I get home.  However, I am looking forward to seeing the kids and adults again.  I get my daily amount of hu...

Wednesday was a week today since I left the hospital.  Friday it will be two weeks since my surgery.  I'm home and trying to get my strength back up.  The doctor was not kidding when he said that it is a very painful surgery.  But, I'm finally down to one pain pill a day.  The one pill is usually in the evenings.  It's one thing to have some pain or be uncomfortable during the day, but trying to sleep when your hurting is difficult.  I still get tired easily.  Yesterday I decided to make cookie dough and freeze it for Easter.  Between the breaks that I had to take, the two hour task ended up most of the day.  So, I can see why the doctors have told me not to rush back to work.  My body is still healing and it's a slow process. I had my PCP appointment yesterday.  What really surprised me was the many questions the nurse asked me about my mental state.  I love how they are looking at the whole body, not just the physical....

In 2022, my word for the year was Breathe.  It was a hard couple years watching Kent's decline.  I needed a year to just Be...To stop...To rest... To mentally adjust to everything that I had gone though.   And figure out what a new normal might look like.  Last year my word was Wellness.  It was way past time to take care of me.  Walking a few more steps and eating a few more vegetables.  Add in a few doctor appointments.   This year, my word is Trust.  You see some of those doctor's appointments, didn't go as planned.  In October, I finally went to the doctor for some pain I was having in my lower abdomen.  Doctor said it must be an abdominal hernia.  No big deal.  Easy-Peasy surgery and I'll be good to go.  I was sent for a CT scan to confirm.  I really was not worried.  Doctor was confident that was the issue. Until that wasn't the issue.  It's never a good thing when doctor says they need ...