Monday, June 20, 2011

Always Luke. . .



It just seems like it always falls to Luke. Joey is healthy. Faith is healthy. When something happens, it falls on Luke. This is the first summer my kids are going to camp. So, one of the first things they need are physicals. Faith did fine and she didn't need any shots so she was being so sympathetic to her brothers by dancing around. Joey did fine although he had to get shots. Then, it was Luke's turn. He got his two shots as well. And then, they found a heart murmur. At that point, I really didn't think a lot about it. He's had it since birth and I kinda' remember his pediatrician saying it but saying not to worry about it. He never did any other testing. Plus, Kent has one. I hear of people all of the time with hear murmurs. No biggie, right?

But, with all of the health factors affecting not only adults but becoming more common in children, they want to have it checked out. We schedule our EKG once school is over the next week. Luckily, we have a branch of the Arkansas Children's Hospital close to us so we didn't have to travel to Little Rock again. Have you ever seen one of those EKG's? In some of those pictures, Luke and I saw that mask that is on those Scream movies. Very weird. I have never seen one before even with all of Kent's heart disease. It took a little over an hour. They told his that it gets sent to a pediatric heart specialist in Little Rock and they send the results back to the family doctor in a few days.

I went today and they told me that Luke does have a small hole. They said that it is fairly normal spot. It is a hole babies need while they are in the womb but closes naturally after a few months of birth. Usually. Of course, not with Luke. I naturally looked it up online and it sounded as okay as a hole in the heart can but then at the bottom the article said that it is common to find in stroke patients and often have other heart defects. Greeaat! I don't even want to think about that one!

Also, when reading through the report, I'm thinking okay...sounding good....this works normal....we can do this....this is normal...we're almost to the end of the report...we're going to make it.....Nope. Almost the last sentence in the report is, "early bifurcation of left circumflex." Yeah, if your like me, you hit another tab on the computer and type that in to see what that means in English. And if you do, you will find that Luke already is starting a blockage in his left coronary artery. Seriously?!?! He is only 12 years old! So, this week, I get to make an appointment with a pediatric heart surgeon and find out what other tests he wants to run.

I really don't understand. Why does it always have to be Luke? Doesn't he have enough on his plate? Isn't autism and learning disabilities enough? Do we have to add food allergies and asthma? He also has foot problems and hearing/ear doctors. Did we really need to add heart disease to his list? I know that it is not for me so say. And, I also know that there is a greater plan that I cannot see. I have reassured Luke of that several times through the years. There is a reason. God does have a plan. But ~ it so hard for Luke because he knows he is different. I've told Luke before that he must be a very strong person for God to keep giving him things to handle. I just pray that I am.

"I will say to the Lord, 'My refugee and my fortress, my God, in whom I trust.'
For He will deliver you from the snare of the fowler and the deadly pestilence.
He will cover you with His pinions, and under His wings you will you will find refuge;
And His faithfulness is a shield and buckler."
Psalm 91:2-4

4 comments:

Kacee said...

You and your family are in our thoughts and prayers. We love you all! Let me know if I can help in any way. *Don't forget Jeremiah 29:11!!

Holly said...

Praying for Luke with you, and praying for his heart to be healed. God knit him, He will watch over him.
Remember to be thankful he is here with you. I know how you feel-I have a weak one too. But I'm thrilled she wasn't one of the ones my friends told me was "better off this way". Thankful for Luke's life on Earth. Hugs, holly

Fawn said...

Jennene, I am so sorry and had no idea you were going through this. I will definitely be praying for Luke and the doctors through this process. You are needing prayer too, so I won't forget you. I wish God gave us immediate understanding about these trials. He will give you the grace to keep trusting Him even when it's hard. Please know I am always available to talk and pray with you. Love you!

Denise said...

Jen, I'm so sorry to hear about Luke. Bless his heart. I will keep all of you in my prayers. If you need to talk you know where to find me. Love you!